Tuesday, July 31, 2007

Testing... 1,2,3...

I had my echocardiogram today. It was a sonogram and only took about 20 minutes. I got to see my heart beating with the little valve just a flappin' away. I have palpitations and she asked me if I drank lots of coffee - and I told her no, lots of soda, and she said the caffeine will do that. I got the rest of my appts scheduled too. Some of you have been asking about surgery and how I'm doing and when Jim gets back, etc. So I thought I'd give you a visual. (Yes, I'm just that good.)

Tuesday July 31: Echocardiogram
Wed. Aug 1: Consult with plastic surgeon re: reconstruction after surgery
Thurs. Aug 2: Bone Scan and CAT Scan and then pick up Erik from camp
Friday - Mon: Try not to kill Erik
Tues. Aug 7: Meet with Oncologist who will go over the results of all the tests - decide which surgery to do.
Wed. Aug 8: Possible surgery date
Thurs. Aug 9: Jim gets back home at 8PM

Ironically Erik's primary babysitter is leaving for Cancun right after camp and won't be back for awhile. My mom has offered to help with Erik and I have a back-up babysitter too. Thanks for your concern and if you have any questions, just leave me a comment and I'll reply there.

As for how I'm feeling right now or if I feel "alone" since Jim and Erik are gone - I'm doing really well. These tests are painless. I just hope I "pass" all of them. I never was much good at test-taking. I'm really enjoying having the house to myself. I'm sure Erik is having a lot of fun at camp and Jim calls me at least twice everyday from Scotland. He tells me he's having a good time with the girls and that they seem to have formed a small baseball team with some neighborhood boys. At this point with my tests and consults spread so far out - he may be here for surgery or at least the recovery aspect. Remember, there may be a chance that I do the chemo first and then the surgery at a later date. I won't know for certain until Tuesday, August 7th and I'll be sure to blog again then and let you all know.

Until then, I'll leave you with a very technical image of the CAT Scan procedure:

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Friday, July 27, 2007

Pincushion

So when my ma first found out I had bc, she bought me a tiny plant called a pincushion.

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Isn't it cute? She told me that since I was going to be a pincushion soon that I should have it. And I laughed at the time but man, she wasn't kidding!

Today I met my Oncologist. Her name is Karen Holzer. An oncologist is someone who takes care of you after your surgery and sets up all the chemo/radiation/hormone therapy. She was a pretty nice lady. Unfortunately, she didn't help me make my choice. Well, she did help rule out one of them. She said not to do the biopsy and then a "blind" lumpectomy. She said it would be better to do chemo/radiation first, shrinking the tumor and then having the lumpectomy. Otherwise she said to get the mastectomy. She suggested I have genetic testing that Julie mentioned in her comment, so they took blood for that and some other tests. On Tuesday I'll have an echocardiogram to test the strength of my heart since I have a heart murmur. At some point next week I'll also have a CAT scan and a bone scan to double check that the cancer isn't anywhere else. Yup, pretty soon I think I'm going to resemble a larger version of that tiny plant that ma got me.

If the genetic testing shows that I have a mutant gene that caused the cancer, then it's likely that it will show up in the other breast at a later date and that's what Julie meant when she said I would have a double mastectomy. It's basically a preventative measure. So we're going to wait for all the test results (hopefully I'll know something by the end of next week) and then make the decision about the surgery.

At this point, I'm thinking Jim may just make it back for the big day afterall.

She was nice enough to make copies of my report for me and put it all in a binder for me to take home. She also gave me a book called "Be a Survivor; Your Guide to Breast Cancer Treatment." It has lovely graphic images in there of breast reconstruction. Thanks Doc. ;)

I was two hours in the oncologist office and by the time I left, I decided to go through the McDonald's drive-thru for lunch. Instead of handing her my credit card, I handed her my insurance card by accident. Yes, I'm serious.

Support systems rock.

When I came up with the idea to blog, I didn't actually think anyone would read it. Surprisingly I got quite a few emails and myspace messages right away that let me know that not only are you reading, but you are glad that I am doing this. I wanted to thank you for the kudos. I suppose that while this makes it easier to explain what's going on to everyone all at the same time, it also makes it easier on you because you don't have to ask all the time. Double-whammy goodness!

I was telling my friend Ed that it's funny how something like this can bring folks together. He asked if he could tell a couple of our mutual friends that I don't see too often. I told him that was fine. At first I'd hoped to sweep this under the rug and just tell a couple friends and family. Then I realized that it might be a tad bit awkward if I saw them later while I'm bald and they're mad that I didn't tell them. In addition, friends and family have become an awesome support system. My friends have been amazing - wow. I haven't even had my surgery yet and Angie's wanting to freeze food and bring it to me, Lisa's offered to make emergency milk-runs even though she lives ten minutes away and my friend Jill has has phoned everyone she knows to find out the best doctors in town. My dad was coming over every single day as my time on this world was evidently nearing an end, until I told him to chill out. My mom has gone to see the surgeon with me in place of Jim and came armed with five pages of printed questions she got off the internet. They're both doing a bang-up job of taking care of Erik for me when I need help while Jim is gone.

Anyway, I just wanted to let you all know what an awesome support system I have, and to thank you. I've opened up the comments to allow anyone to post without registering to blogger.com. Feel free to leave a comment, introduce yourself, comment on other people's comments, yell, scream, cry, sing - whatever. It's all good because we're all in the same weird boat. :)

Thursday, July 26, 2007

In a Nutshell

Here's a time-table of what's happened up to this date so we can be all caught up.


Late May 2007: Feel a lump in my right breast while showering. Don't pay it much mind.

June 2007: While watching TV with my arm resting up on the couch, I can still feel the lump. Make a mental note to have it checked out.

July 2, 2007: Finally break down and callmy OBGYN. They tell me to come in the next day.

July 3, 2007: OBGYN says, "Yep. There's a lump. I'm sure it's nothing. But we better get it checked out." Not too worried at this point.

July 5, 2007: Go to St. John's Hospital for a mammgram and ultrasound of the right breast where the lump is. Not worried until they call me back in to the ultrasound room for a look at the left breast too. After two hours of mammograms and ultrasounds on both breasts, a doctor calls me into a "couseling room" to tell me she wants to do biopsies of lumps found in both breasts. She tells me there's an "80% chance that they will be benign and it's just done as a precaution." I'm not worried, I'm sure that it's fine.

July 11, 2007: Husband goes with me to the biopsy and waits in the waiting room while they give me a local antisthetic and do needle core biopsies on both breasts. At this point, I'm a little nervous. The biopsy itself is not painful. It's just scary because you're on your stomach with your boob hanging through a hole while people that you can't see poke and prod you from underneath. The worst part was while doing the left breast, the computer broke down. And they proceeded to take the needle in and out until it quit telling them to "shut down."

July 13, 2007: I'm able to shower and remove the dressings from the biopsy sites. It looks as though someone stuck a wooden bbq skewer into each boob. As I get under the shower for the first time since the biopsy, the water burns my skin. It turns out I had a bad rash from the bandages that had been sitting there for so long. Later that day, the caseworker that helped perform the biopsy calls me with the news. The left breast biopsy is benign. The right breast tests positive with cancer. I hand the phone to husband and start to cry. She gives him the name of a surgeon and says she will schedule and appointment for consultation right away. Jim holds me while I cry. He's my rock and after a while, I feel better. Later that night, Jim tells my mom because I can't speak. She's very positive and gives me a hug telling me that everything will be okay.

July 14, 2007: I call my dad and break the news. By now I feel better and can talk about it without breaking down. My dad does not take the news well at all. It's only the second time I've ever heard my dad cry.

July 18, 2007: Jim and I go to the new Springfield Clinic and meet Dr. Wichterman who will be my surgeon. He's nice and explains everything really well. I have Stage II invasive cancer with a tumor that appears to be 2cm big. He tells me there's a 9/10 success rate since they've found it this early. I can either have a lumpectomy (removing the tumor, saving the breast) or a mastectomy (removal of the breast - less chance of recurrance). Since the ultrasound did not show the exact tumor edges, he orders an MRI. Jim is scheduled to visit his daughters in Scotland from July 23 to August 9. I'm supposed to start school on August 16. But after speaking with the doctor, I've chosen to have the outpatient procedure of a lumpectomy followed up by chemo and radiation. He assures me that I should be able to go to school and that Jim should go on his trip. We feel much better.

July 23, 2007 (my 39th birthday): I take Jim to the train station as he leaves for Scotland. He'll be gone almost three weeks. He hates to go, but we've discussed all the options and since it's just outpatient surgery - we decide that he should go. My mom assures him that she'll take care of me while he's gone. Later that day, I go back to St. John's for an MRI. I've never had one before. I knew they put you in a tube but that was it. They ask me if I'm claustrophobic and I say no. It turns out I was wrong. After I'm given an I.V. I'm told to lie on my stomach (this seems a very popular position these days) with my breasts hanging through two holes in a table. After I'm comfortable, he puts ear plugs in both ears to soften the loud noise that the machine makes. He stuffs the table in the tube and suddenly my arms are touching the sides - and he tells me to hold perfectly still. All I wanna do is get the hell out of there. It's too small and I start to have a panic attack. Still, I manage to stay in there, even though my breathing is rapid. Twenty minutes later, he lets me out. He tells me that if I ever need another MRI, to ask for a prescription for a drug called "advaran" to help settle my nerves.

July 25, 2007: Dr. W calls me with the resuts of the MRI. Turns out my tumor is 3.3 cm big, the cancer is going up into the lymph nodes under my arm, and is possibly running down toward the nipple. He suggests a mastectomy to be safe. Time to panic. He asks me to come back and see him the next morning to discuss all the options. I make it through the phone call and have a good cry after. I call Jim and tell him the news. He tells me that he loves me and to have the mastectomy because appearances don't matter as much as my health and he just wants me to be healthy. I decide to go through with the mastectomy.

July 26, 2007 (today): Mom goes with me to see the surgeon while my dad takes Erik to summer camp. [my folks are divorced by the way] Dr. W seems to have changed his tune. Now he's not so insistant that I have a mastectomy. He gives me three options; Option 1) Have a biopsy done of the duct running down to the breast to see if that tissue has cancer. If it doesn't, have the lumpectomy with removal of several lymph nodes under the arm and save the breast. Have chemo and radiation. Recurrance is a possibility down the road in which case the breast would be removed. Option 2) Start chemo and radiation to shrink the tumor, have the biopsy to test the tissue running down to the nipple and if possible, 5 mos. later have the lumpectomy with less of a chance for recurrance. Option 3) Have the mastectomy followed by chemo and radiation. Six mos. later, have reconstructive surgery to restore the breast. I call Jim afterward to tell him what's going on. We're both confused as hell.

Right now: I'm scheduled to meet my Oncologist tomorrow. Her name is Karen and she's at the Springfield Clinic on 7th Street. She's the one that will take care of the chemo and radiation treatments. Dr. W thought I should speak with her since I have no clue what route to take. They all seem the same and I hate each one of them. I don't want to have another biopsy. I don't want a second opinion. Right now I'm leaning toward a mastectomy. But this afternoon I was leaning toward lumpectomy. So I'll see what Karen has to say on Friday and maybe I'll be more sure of myself.

I should note that I'm having some issues. My dad is extremely worried about me and insists on visiting me every day. I love my dad and I appreciate his support, but I don't care who you are - I don't want anyone to visit me every single day. So I told him how I felt, and it hurt his feelings, and he walked out the door. I haven't heard from him since.

Another issue is that I'm very scared about having a mastectomy. Not only will I be bald, but I'll be a bald chick with one boob. I created a new nickname for myself. Boob-icorn. I'll be a bald boobicorn. I consider myself an upbeat person with very little self confidence problems, but a bald boobicorn? Really... I don't know if I'm ready for this.

An Introduction

Hello.

I think I'll begin by introducing myself, explain why I'm blogging, and shed some light on the title "Inside the Amazon." My name is Deanna and I just turned 39. I'm happily married, we have one son who is 8, and I'm currently a student majoring in Special Education. I'm supposed to start student-teaching in the fall and then I'll graduate and be able to start teaching in January 2008. That was the plan anyway. Things went awry about two weeks ago when I found out that I have breast cancer.

Which brings me to why I'm blogging. I've had a lot of doctor's appointments - and I have (thankfully) a lot of folks who care about me and are curious about the outcomes of said appointments. I've been phoning everyone or sending mass emails and messages up to now. This blog will be a way to allow everyone to check my status at their convenience without me going over and over what's going on. Not only will my friends and family be able to see where I'm at physically and mentally, but it will also be a way for me to vent and talk a little bit about what's going on in my head. Another advantage is that maybe someone out there is going through the same types of issues and are just as weirded out as I am.

The title "Inside the Amazon" was chosen for three reasons. I got the term "Amazon" from my friend Ed. When I told him that there was a strong possibility was that I would be having a mastectomy, he compared it to being an Amazon Warrior. He told me about the greek mythological legend where Amazon Warriors cut off one breast so they could better use their bows and arrows. And believe me, if you're a C cup or better - this makes perfect sense. Those suckers can get in the way. Another reason is "The Amazon" (Jungle) which to me represents one adventure I don't really care to take. Everyone knows that there are tons of dangers luking in that joint and anyone who knows me well knows I hate spiders - let alone giant man-squeezing snakes that live there.

The third reason is simply me telling you what's going on - so that you're getting a glimpse Inside the Amazon - any way you look at it.

Feel free to leave comments. I won't be writing every day - probably one to two times per week - unless I have a doctor update or any major news regarding my condition.

Thanks for reading, and here we go...

Amazon Warrior photo by Kellie Yandle 2004